EOSC-Life workshop: Sharing sensitive data – centralised, federated or hybrid?
In this EOSC-Life workshop “Sharing sensitive data – centralised, federated or hybrid?”, we will examine the pros and cons of data sharing approaches by taking a look at specific use cases in the life sciences domain.
Large-scale research collaborations in life sciences face a wide range of challenges when jointly gathering sensitive data to address research questions. First of all, ethical and legal issues need to be addressed, but there is also a wide range of other aspects to be considered: data ownership, technical requirements and system performance, data privacy and security, data quality and sustainability.
The workshop goal is to offer clear guidance: When should research collaborations centralise the data collections and when is it better to opt for a federated or hybrid approach? What would be the key organizational and technical measures to take in either case?